There's been a million different things that have lead me to this update. It's been a long time coming, however.
Today seems like an important day for this. Today, the government voted against the #SpartacusReport request to pause plans to scrap Disability Living Allowance. Very worrying and disappointing. Clearly the very real fears of disabled people in this country aren't that important.
If you're reading this, you've probably met me in real life. The fact that I am disabled is therefore not big news to you. Cerebral Palsy and Spina Bifida; thank you for asking. Don't worry; you can't catch it. It would leave me wheelchair-bound, were it not for a sadistic routine of almost daily gym visits. Seriously, I'm that ill. Right now, it's okay. Not great. Okay.
If you've never met me, you probably didn't know this. Here's why.
I don't explicitly talk about this on here for one very important reason, the one thing I hold dear as a struggling performer who has a disability.
I don't want to be given a break because of my condition. I reserve the right to be shit.
I think it's safe to assume that the pages of the NME have been largely free of singer-songwriter-performers with CP of late. Let's say I've cornered that particular niche. But to broadcast the fact that I am a disabled performer as if that fact were part of what I do, I'm not so comfortable with that. Not comfortable at all, actually. I can't play the Disability Card. I am always going to be paranoid of getting any kind of leeway because of being thought of as a disabled person 'having a go'. I want people to feel free to hate my music; certainly don't give me any mileage because I'm a bit wobbly*. Maybe it's not an issue, but it definitely keeps me awake at night.
Sure enough, things could go the other way. The casual use of disablist language on twitter shows just how far we are from living in a society that accepts disabled people as equal. Will people disregard my work because of my condition? Would success put me in line for yet more discrimination?
I've been accused many times of hiding the fact; of being very dishonest with this blog. Readers have pointed to the fact that I should be 'real' enough to be open about it. The truth is, it's just not at the forefront of my mind at the moment. Not discussing it is fair, I feel, not dishonest. I'm an autobiographical writer, true, but is everything in my life constrained by my disability? Obviously not. The point of my career is not to be a disabled recording artist. I'm just doing the same thing as everybody else; screwing up relationships, hurting people I love, hurting myself... all that good singer/songwriter stuff. My life is fucked up enough at times, being disabled doesn't change a lot of that. I'm quite comfortable in my outsiderishness, you know. I have no desire to fit in anyway, disabled or not.
I'm digressing wildly.
The issues surrounding the Sparticus Report went some way to pursuade me to start talking about this in more detail. The struggle that disabled people will face due to the government's proposals is immense. If nothing else, I need to stand up and be counted, and for that to be a for a positive reason. After today, it's clear that we have a long fight ahead.
Before writing this, I appealed for advice from Nicola Clark on my unease about 'coming out' with the disability stuff. Nicky has been very helpful to me (and countless others) via twitter, and was kind enough to return my email. She felt very strongly that disabled artists need to make themselves known as such, but pointed out that many (like me) felt nervous about playing 'The Disability Card'. After her gentle encouragement, I felt a teeny bit less terrified by the thought of talking about all this.
Clearly, it's important to people. There are so few role models for disabled people in this country (not suggesting that I would make a good one) that clearly any performer that can use their position wisely really, really must. I know how much it would have meant to me when I was younger, if there had been someone I could relate too on that level, who's work I admired. To think that I could maybe, just maybe, have that influence over another young disabled person; well, that's definitely worth being in the firing line for.
*Not my term; pinched from the brilliant Francesca Martinez.
Tuesday, 17 January 2012
Thursday, 12 January 2012
Spartacus Report Latest.
At least I think this is where we're at.
So; despite Lords voting a big 'no' on three major issues relating to the proposed cuts affecting disabled people, our government is forging ahead in plans to overturn this vote. Good for them.
Right now the important thing is to keep the issue visible. It's not unreasonable; disabled people should be consulted on these proposed changes. That is not the case. The Tories seem to know what they want the outcome to be, and fuck everyone affected, basically.
They can't ignore it if it doesn't go away. Keep tweeting. Keep blogging. The internet is the only place where comment remains free. By stacking the overwhelming evidence against the cuts higher and higher, this government will be forced to rethink. It's still exciting, and it's definitely not over.
Here's a link to Sue Marsh's blog for more on this:
http://diaryofabenefitscrounger.blogspot.com/2012/01/our-response-to-government-today.html
(Thanks to @AzuriteEnigma for kindly linking me the facts on this earlier today.)
So; despite Lords voting a big 'no' on three major issues relating to the proposed cuts affecting disabled people, our government is forging ahead in plans to overturn this vote. Good for them.
Right now the important thing is to keep the issue visible. It's not unreasonable; disabled people should be consulted on these proposed changes. That is not the case. The Tories seem to know what they want the outcome to be, and fuck everyone affected, basically.
They can't ignore it if it doesn't go away. Keep tweeting. Keep blogging. The internet is the only place where comment remains free. By stacking the overwhelming evidence against the cuts higher and higher, this government will be forced to rethink. It's still exciting, and it's definitely not over.
Here's a link to Sue Marsh's blog for more on this:
http://diaryofabenefitscrounger.blogspot.com/2012/01/our-response-to-government-today.html
(Thanks to @AzuriteEnigma for kindly linking me the facts on this earlier today.)
Wednesday, 11 January 2012
Spartacus?
It's a big day on the Spartacus issue, apparently.
I'm so busy today I haven't had chance to look properly. My twitter feed is filled with reports of good news about the report. Life changing decisions have been made today for thousands of people in the House Of Lords. If anybody can point me in the direction of up to date, accurate I'd be very grateful. For now, fingers crossed. Imagine; one of the most devastating proposals a British government has ever made may well have been beaten via twitter...
I'm so busy today I haven't had chance to look properly. My twitter feed is filled with reports of good news about the report. Life changing decisions have been made today for thousands of people in the House Of Lords. If anybody can point me in the direction of up to date, accurate I'd be very grateful. For now, fingers crossed. Imagine; one of the most devastating proposals a British government has ever made may well have been beaten via twitter...
Monday, 9 January 2012
I (like many) Am Spartacus.
Today is a pretty important day. It may well prove to be a teeny bit historic for many people in the UK.
What's been christened the Spartacus Report (actually the Responsible Reform report) has been published today. This report has been pulled together largely by Sue Marsh, a Guardian contributer who's DLA was recently stopped, despite her debilitating illness.
Disability benefits have been (very quitely) under threat from the current Tory government for some time. The emergency budget of 2010 outlined plans to cut spending on Disability Living Allowance by 20%. What happens to the 20% of people who lose the help they need was never made clear to my knowledge. Changes to carer's allowances were made to ensure that those looking after disabled people would not get the help they need. Particularly alarming was a change that would mean that someone in a wheelchair who could propel themselves would be considered fully mobile.
The Tories are quite skilled at being insensitive to issues of disability. Earlier this year I challenged MP Philip Davies on his comments that disabled people should be willing to accept wages below minimum. He politely reassured me that I "didn't understand" the issue. Only this week our PM has used Tourette's as the butt of an unfunny joke, oblivious to the offense it would cause. By way of apology he said it was a lesson learned in "drowning out the noise of The Commons", rather than learning the lesson that it's important not to be a cunt. I'm digressing wildly.
One of the most incredible things about things about this report is the way it has come about. Sue Marsh (and others) pulled this together themselves, appealing for funding on twitter. The £3000+ needed to get this information into the hands of people who could change the situations was raised in around 24 hours. The issue has exploded on twitter. #SpartacusReport has been the number 2 trending topic in the UK today. There's a petition with over 12,000 signatures already. It's really moving. There's still a long way to go; but if Cameron & His Cronies can ignore the issue after all this, then we're all a bit fucked, aren't we?
Here's the links for quickness:
The report: http://www.scope.org.uk/sites/default/files/Responsible%20Reform.pdf
Today's Guardian piece from Sue Marsh: http://www.guardian.co.uk/commentisfree/2012/jan/08/disabled-people-welfare-reform-sham
Here's the petition: http://epetitions.direct.gov.uk/petitions/20968
What's been christened the Spartacus Report (actually the Responsible Reform report) has been published today. This report has been pulled together largely by Sue Marsh, a Guardian contributer who's DLA was recently stopped, despite her debilitating illness.
Disability benefits have been (very quitely) under threat from the current Tory government for some time. The emergency budget of 2010 outlined plans to cut spending on Disability Living Allowance by 20%. What happens to the 20% of people who lose the help they need was never made clear to my knowledge. Changes to carer's allowances were made to ensure that those looking after disabled people would not get the help they need. Particularly alarming was a change that would mean that someone in a wheelchair who could propel themselves would be considered fully mobile.
The Tories are quite skilled at being insensitive to issues of disability. Earlier this year I challenged MP Philip Davies on his comments that disabled people should be willing to accept wages below minimum. He politely reassured me that I "didn't understand" the issue. Only this week our PM has used Tourette's as the butt of an unfunny joke, oblivious to the offense it would cause. By way of apology he said it was a lesson learned in "drowning out the noise of The Commons", rather than learning the lesson that it's important not to be a cunt. I'm digressing wildly.
One of the most incredible things about things about this report is the way it has come about. Sue Marsh (and others) pulled this together themselves, appealing for funding on twitter. The £3000+ needed to get this information into the hands of people who could change the situations was raised in around 24 hours. The issue has exploded on twitter. #SpartacusReport has been the number 2 trending topic in the UK today. There's a petition with over 12,000 signatures already. It's really moving. There's still a long way to go; but if Cameron & His Cronies can ignore the issue after all this, then we're all a bit fucked, aren't we?
Here's the links for quickness:
The report: http://www.scope.org.uk/sites/default/files/Responsible%20Reform.pdf
Today's Guardian piece from Sue Marsh: http://www.guardian.co.uk/commentisfree/2012/jan/08/disabled-people-welfare-reform-sham
Here's the petition: http://epetitions.direct.gov.uk/petitions/20968
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